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dc.contributorUniversitat Ramon Llull. Facultat de Psicologia, Ciències de l'Educació i de l'Esport Blanquerna
dc.contributor.authorMuries-Cantán, Olga
dc.contributor.authorGiné, Climent
dc.contributor.authorBrown, Roy I.
dc.contributor.authorBaqués, Natasha
dc.contributor.authorSchippers, Alice
dc.date.accessioned2023-12-19T20:14:09Z
dc.date.available2023-12-19T20:14:09Z
dc.date.issued2023-01
dc.identifier.urihttp://hdl.handle.net/20.500.14342/3683
dc.description.abstractSiblings' interactions and shared experiences influence their perceptions of quality of life. Recently, research about siblings of children with intellectual and developmental disabilities has been significantly expanded but data from Southern European countries is still missing. This research was carried out in Catalonia (northeast Spain) a region in the Mediterranean area with its own shared culture, language and traditions that equally embraces an important diversity of ethnicities and cultures. The main aim was to collect siblings' perceptions on quality of life from siblings' own voices. Semi-structured interviews were conducted with 14 siblings aged 5–11 years old and thematically analyzed using the following domains: joint activities; mutual understanding; private time; acceptance; forbearance; trust in well-being; exchanging experiences; social support; and dealing with the outside world. Siblings reported a variety of experiences in relation to having a brother or a sister with intellectual and developmental disabilities (I/DD), including unique characteristics of their quality of life perceptions. There were also some common factors amongst the siblings' experiences, such as the importance of being able to communicate properly with their brothers or sisters with I/DD. It emerged that having their own time with their parents was an important factor in their own development. This research echoes some siblings' beliefs that society needs to provide a conscious revision of values and ideas regarding disability. Implications for research and practice are described.ca
dc.format.extent13ca
dc.language.isoengca
dc.publisherWileyca
dc.relation.ispartofJournal of Policy and Practice in Intellectual Disabilities, 2023, Vol. 20, Núm. 2, p. 192-204ca
dc.rightsAttribution-NonCommercial 4.0 International*
dc.rights© L'autor/aca
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/*
dc.subject.otherGermans i germanesca
dc.subject.otherTrastorns del desenvolupamentca
dc.subject.otherDiscapacitats mentalsca
dc.subject.otherQualitat de vidaca
dc.subject.otherFamíliaca
dc.titleSiblings of children with intellectual and developmental disabilities: Quality of life perceptions from Cataloniaca
dc.typeinfo:eu-repo/semantics/articleca
dc.rights.accessLevelinfo:eu-repo/semantics/openAccess
dc.embargo.termscapca
dc.identifier.doihttps://doi.org/10.1111/jppi.12451ca
dc.relation.projectIDinfo:eu-repo/grantAgreement/FPCEEB/BRB1617-DISQUAVIca
dc.description.versioninfo:eu-repo/semantics/publishedVersionca


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Attribution-NonCommercial 4.0 International
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